There are still very important lessons to learn from the life and death of little Charlie Gard.
Over the course of the last several weeks, no story has been as important as the tragedy of this little baby in the United Kingdom with a rare mitochondrial disease.
His story first came to world attention when his parents made a public appeal to the people of Britain and all around the world of the fact that they were no longer able to make decisions on behalf of their infant son and his health treatments.
They knew that there were experimental treatments. They raised money on their own to try to make those treatments available for their infant son.
There’s a good reason why Charlie Gard became such a focus of conversation and concern. Columnist Charles Krauthammer put his finger exactly on the issue, when he wrote: “There is only one real question. What’s best for Charlie? But because he can’t speak for himself, we resort to a second question: Who is to speak for him?”
Yes, that is exactly the question, and it has answered with parents, not with the medical establishment, nor with the government. That’s what’s at stake with this tragedy, and we dare not forget it.[soundcloud url=”https://api.soundcloud.com/tracks/337010500″ params=”color=ff5500&auto_play=false&hide_related=false&show_comments=true&show_user=true&show_reposts=false” width=”100%” height=”166″ iframe=”true” /]